Jack Trotter 

Jack has a very rare genetic and metabolic disorder called Pyridoxine Dependent Epilepsy. This condition has left Jack with a brain injury, as well as many struggles and delays. To put it simply, Jack’s body lacks an essential enzyme known as Antiquitin, which breaks down the protein building block called lysine in the brain. For the first 5.5 months of Jack’s life, he suffered from intractable epilepsy (uncontrolled seizures). After much genetic testing, Jack was properly diagnosed with PDE and we have been fighting for his development ever since! Jack is the happiest, sweetest, most wonderful little boy despite everything he has been through! And he loves the muppets!

To read his full story visit the link below: https://www.lovewhatmatters.com/jack-had-been-screaming-for-over-10-hours-no-tears-did-you-forget-how-to-hold-a-baby-pyridoxine-dependant-epilepsy/