Sutton Burnett

 
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“Cate was born with Ichthyosis, a rare, genetic disease that makes her skin thick, dry, and cracked and causes her to not be able to sweat. Affecting less than 1 in 300,000 people internationally, her disease is the result of an autosomal recessive chromosomal abnormality, and there is no cure. Cate will have Ichthyosis for the rest of her life. To combat her extremely dry skin, she takes long baths (sometimes up to an hour and a half!) in salt, baking soda, and sometimes bleach. She also has excessive amounts of lotion and cream applied to her skin multiple times a day. Due to Cate’s Ichthyosis, formally called Lamellar Ichthyosis or ARCI, she does not have the ability to sweat. This is a life threatening condition that limits a lot of what Cate is able to do physically. To keep Cate from overheating, we keep the room temperature at 68 degrees year round, including her classroom at school and when she goes on play dates. She also wears an ice vest when her body temperature goes over 99 degrees to keep her from fainting, having a seizure, or even dying. This life has been a wild ride, but we wouldn’t trade it or change Cate for anything!”